Seen, yet not Heard

If you have been diagnosed with, or suspect you would be diagnosed with, any number of Congenital Vascular Anomalies or Syndromes, such as Klippel-Trenaunay, Parkes Weber, Sturge Weber, PROTEUS, CLOVES, MC-CM, PROS, even Port Wine Stain or Vascular Birthmark, then I’ll bet we have more in common than not. If you are a parent than you, your parent’s, and my parent’s likely had/have similar questions or concerns, particularly if you just birthed your precious baby or are in the early formative years of their childhood. If you are a wife, husband, partner, sister, brother, cousin, friend, caregiver, or compassionate advocate, then you and my wife, as well as my doctors and nurses who have treated my general and emergency illnesses likely have major common ground. THIS IS OUR PERSONAL JOURNEY. IT IS OFFERRED IN THE SPIRIT OF ADVOCACY, AWARENESS, AND COMPASSION.


I have a Facebook companion to this website which serves as an excerpted magazine..

…diagnosed as permanently disabled at 43, a Writer blossomed

Seen, yet not Heard ® ©; Born Rare, Living Large ® ©; Care4Klippel-Trenaunay ® ©; Care4KT; Care4Rare ® © | 2018