Touch or click the links to access city views of the K-T Connections directory
A huge thank you to the K-T Support Community for their unselfish participation in this directory and for being an important part of my personal safety net. Keep the recommendations coming! Please remember to instruct me on your reference regarding your approval to include your name as the source. If you elect not to approve, this is quite OK, I’ll simply acknowledge the referral coming from the K-T Support Community.
The goal of this publication is to provide K-T Kids and K-T Parents a starting place. I’m not suggesting that there are no other qualified K-T experienced facilities or doctors than those listed here. Simply put, I do not have the personal resources to discover and list every doctor with K-T experience in the world. Your own personal research is always warranted, even when considering the doctors listed here.
Please don’t infer depth or breadth of experience or accessible care based on order of placement here. I’m working off a list and publishing names, etc. as quickly as time allows.
No fees are charged to access this directory and no monies have been or will be taken to obtain a spot in this directory. Born affected by Klippel-Trenaunay Syndrome, I’m a 15-year volunteer dedicated to the care and education of K-T Kids and K-T Parents. The information compiled here is significantly the result and contribution of many K-T Parents and K-T Kids who have provided personal referrals knowing these endeavors will help new parents and folks born with K-T to locate resources that have experience with K-T Syndrome. This in the aggregate is their product.
I continue to do personal research seeking out resources, particularly in cities not currently listed here, and especially those that have a deep commitment to our interests.
Many, not all, of the facilities and doctors listed in this journal are long-standing pioneers in the diagnosis and management of Klippel-Trenaunay Syndrome (K-T). The pioneers typically work at legacy medical institutions and have substantial experience with K-T both in terms of depth and complexity of research and care and large number of patients. Many of the pioneering or legacy facilities and doctors are reported to be open to consultation with your local doctor. Hopefully, if there were that need, the local doctors with less experience would be willing to contact those with more experience for consultation.
I’m not a member of a private club, nor do I feel comfortable suggesting that K-T professionals must come from some exclusive medical club. There are facilities and doctors listed here that may not have the same breadth and depth of experience as the pioneers. These professionals have been referred by members of the Klippel-Trenaunay Support Group. In that not all members are able to travel to legacy facilities and doctors, we include these because our members have found these entities to be reasonably informed, or willing to learn about K-T, as well as having given the referring party a satisfactory experience.
NO CERTIFICATIONS of the qualifications of listed facilities and doctors are made here. Again, due diligence is required on your part before seeking professional attention from any of these entities. It all rests with you. You’re encouraged to post inquiries to K-T Forums asking their members if they have any experience with these facilities and doctors.
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Note: For additional connections please contact Mellenee Finger, the manager of K-T.ORG. This organization is the pioneer of Klippel-Trenaunay Support Group. First among equals it organized in 1986 for the express purpose of challenging the best-of-the-best medical providers to offer innovative care for K-T Syndrome kids and adults. It is an open membership group that has four points of light – (1) The Bi-Annual Klippel-Trenaunay Syndrome Conference , (2) The Email K-T Support Group, (3) The Facebook K-T Support Group (K-T.ORG), and (4) The classically delivered Website Support Group (K-T.ORG).