… ” we-Willi” likes it!

 

Klippel Trenaunay Support Group [k-t.org]

… the first-in-the-world Klippel-Trenaunay Syndrome Support Group
… the pioneers of KT Suport Groups

• Organization’s Website and Blog Group [www]
• Facebook Discussion Group [www]
• Email Discussion Group

• Option 1: Go directly to the email group’s admin webpage and fill in the “Request to Join” information. [www]
• Option 2: Send an email message to listserv-request@k-t.org to join.
• Note: This group uses a blast email service called “Listserv”. It is run by administrators for the organization. They are [coolmatt@sorrowind.net] and [mellenee.finger@fuse.net]

Bi-annual Conference (July 2012): Rochester, MN / Open to All / Families Welcome and Encouraged / Medical Presentations by K-T experienced doctors / K-T Teen Groups / K-T Parent Groups / Coordinated with the Mayo Clinic which provides consultation and diagnostic appointments, at your option

General Links

• PubMedHealth [www]
• MedlinePlus
• National Institues of Health – Nureo [www]
• National Institutes of Health – Genetics Home Reference [www]
• Patient.co.uk
• International Birth Defects Information System
• Birthmarks.us
• NOVA – National Organization of Vascular Anamolies

Hospitals, Clinics and Institutions of Care

• Cleveland Clinic
• Children’s Hospital Boston
• Cincinnati Children’s Hospital
• University of Maryland Medical Center [www]
• Seattle Children’s  [www]

Research & Papers

• Comparing The Effects of Surgical Intervention, Chemical Intervention, and Compression Therapy in Patients with Klippel-Trenaunay Syndrome, Matthew S. Nole, November 23, 1998 [www]
• Vascular Medicine Article
• Successful Management of Pregnancy Complicated by Klippel-Trenaunay Syndrome [www]