Klippel Trenaunay Support Group [k-t.org]
… the first-in-the-world Klippel-Trenaunay Syndrome Support Group
… the pioneers of KT Suport Groups
- Organization’s Website and Blog Group [www]
- Facebook Discussion Group [www]
- Email Discussion Group
- Option 1: Go directly to the email group’s admin webpage and fill in the “Request to Join” information. [www]
- Option 2: Send an email message to listserv-request@k-t.org to join.
- Note: This group uses a blast email service called “Listserv”. It is run by administrators for the organization. They are [coolmatt@sorrowind.net] and [mellenee.finger@fuse.net]
General Links
- PubMedHealth [www]
- MedlinePlus
- National Institues of Health – Nureo [www]
- National Institutes of Health – Genetics Home Reference [www]
- Patient.co.uk
- International Birth Defects Information System
- Birthmarks.us
- NOVA – National Organization of Vascular Anamolies
Hospitals, Clinics and Institutions of Care
- Cleveland Clinic
- Children’s Hospital Boston
- Cincinnati Children’s Hospital
- University of Maryland Medical Center [www]
- Seattle Children’s [www]
Research & Papers
- Comparing The Effects of Surgical Intervention, Chemical Intervention, and Compression Therapy in Patients with Klippel-Trenaunay Syndrome, Matthew S. Nole, November 23, 1998 [www]
- Vascular Medicine Article
- Successful Management of Pregnancy Complicated by Klippel-Trenaunay Syndrome [www]
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