More Research *
Here is a link to yet another definition of K-T Syndrome. It’s presented by the Center for Endovascular Surgery: Klippel-Trenaunay Syndrome.
I keep posting additional definitions of K-T Syndrome as I find them. One concern I have is that the casual reader may get frustrated with the variability in these definitions. This feeling is palpable for me. So much so, I continue my research in this area with the intent of synthesizing it all, including taking issue with some of the weaker, lazy definitions.
A very good attorney instructed me once, “He who controls the definitions in a case, wins the case.” We K-T kids need to control our own definitions if we are ever going to get a better understanding for ourselves, the medical community, and our governments. In the meantime, I hope our work informs our community and reinforces our need to organize.
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* Continuing our work to bring you the world’s most comprehensive array of information on K-T